Raising money for the Australian Leukodystrophy Support Group
What a long name hey? I certainly didn't know what it was when my little brother, Damon, was diagnosed with this condition when I was 14.
"Leukodystrophies are a group of degenerative diseases that affect the nervous system. They most often take hold during childhood with many losing the ability to see, hear, walk, sit up or even swallow. There is no cure for Leukodystrophy and the impact on families is devastating."
Damon passed away from this just prior to his 3rd birthday!
What am I doing...
As you can see, I am training to complete a half marathon in October. I set out on this journey at the start of July and am hoping that I will make it across the line so that I can raise much needed funds to support families that are affected by this debilitating disease (one that is so often overlooked).
The Australian Leukodystrophy Support Group (ALDS) is an organisation that I have had a long association with. They are a non-profit, voluntary organisation helping families and individuals affected by Leukodystrophy. I have also been their treasurer over the past three years!
What can you do to help?
Support me to complete this half marathon and donate some money to the ALDS.
For those of you that didn't meet the wonderful Damon, I have included a copy of our families story below.
Thanks for your support!
The Australian Leukodystrophy Support Group Inc is the Registered Charity name for Leukodystrophy Australia. We assist individuals and families whose precious and loved one/s have a life limiting genetic Neurological illness imposing great emotional, financial and physical stress on everyone. All money is used for families. Please have a look at our website www.leuko.org.au
If you are participating in an event and wish to nominate Leukodystrophy Australia as your preferred charity, we are very grateful. Should you require assistance, please let us know.
- Gerard O'Keeffe: $1,001.00
- Des Okeeffe: $1,000.00